Asociace genové terapie, z.s.
http://www.asgent.org Phone: 602 620 006 Email: matejkova@asgent.org
We are a voluntary organization of patients and professionals whose aim is to support the research on potential treatment of rare genetic disorders such as Angelman syndrome (AS). We bring together experts, public, families and organizations to find the ways of financing research in the area of rare diseases. The research has been started and is led by a member of our scientific board – Assoc. prof. Radislav Sedláček, PhD. - Director of the Czech Center for Phenogenomics.
